Archive for the ‘royal free’ category

Chopped Liver – Moving Away From The Pulsebeat

February 26, 2011

My temperature has been steadily coming down all day – probably as a consequence of the course IV antibiotics I’ve started.

It’s interesting to see from my chart that at one point when my temperature was at its highest (38.5 by hospital thermometer) so my pulse had doubled to 120. Sure signs that the body is maniacally fighting some infection.

I’ve had an ultrasound and chest X-ray and both are fine. So the source of the infection remains a mystery – to me anyway.

It could be CMV. I hope it is.

CMV is a liver virus that affects about half the population. It is easily treatable. Many will have this virus and not realise it. Others may feel unwell and seek medical help

Now I have never had CMV but… my transplanted liver has had it.

So it is more likely that I will get this virus and fairly soon after transplant.

Very sleepy now. Been a bit of an emotional day all told. Need to go to sleep now so that the nurse can wake me up to give my sleeping tablets.


Chopped Liver – Two Hearts

December 3, 2010

A couple of months ago I had to go to the hospital for an Echocardiogram.

I don’t know why – I just do what I’m told.

And I did what I was told. I went to the appointment – an hour and a half round trip, a half hour wait, and a 5 minute checkup. They said all was ok.

A few weeks later, the liver transplant co-ordinator phoned me (that is a scary phone call, let me tell you) to ask me why I had not attended the appointment.

But… but… but…

It was no good – they didn’t have the results. They would have to arrange another one.

And so it was a couple of weeks later, I received an appointment for today at 11:30.

And so it was a few days later I received another appointment for the same procedure in the same place on the same day at the same time.

And so, today I turned up for my appointment. The doc said to me “I have to do the procedure twice because I have you down as having two appointments for the same procedure today”.

“What?” “You must be joking”

Ha! Ha! So this guy, right, he goes into a bar...

He was.

Just joking that is.

So I had the checkup – and guess what? All was ok.

Quelle waste of time.

Now there… are 3…. steps to… carry a donor card – ooh, wap wap!
Just follow steps 1, 2 and 3.

Chopped Liver – Boom Bang-a-Bang

November 5, 2010

Is it me or has the firework season been a bit of a damp squib this year? Wasn’t there so much more interest about Halloween. Is this another example of the UK being the 51st State of America?

We commemorate 5th November, or Fireworks Day, or Bonfire Night, or Guy Fawkes Day to remember, bizarrely the actions of a man who broke into the Houses of Parliament with a bag of dynamite intending to blow the place up, but got caught in the act – some say Guy Fawkes was the only man in history to enter the Houses of Parliament with HONEST intentions – I couldn’t possibly comment.

But I remember over the years, and as a child that in the days, nay weeks, leading up to the 5th November there were firework BOOMS in the night sky all the time – now, and despite the fact that it coincides with Diwali, it just hasn’t happened.

It’s happening right now – at 9:00pm – but I sat staring out from our lofty perch with Weedy, looking across the skyline of North-West London between 7 and 7:30 and it was quiet. Contrast that to our experiences last week at Halloween and the difference is striking.

The reason? We like dressing up and acting-out in scary gory costumes – mostly in twopence-halfpenny masks and outfits from Asda – so great fun/little expense.


Contrast that with an event we no longer identify with and where fireworks cost an absolute fortune, are extremely dangerous, unpleasant for pets, and last for barely a nano-second. Boom. Flash – there goes another fiver!

I will be taking Weedy to a local display tomorrow night – give him a taste of it.

Oh.. and my Liver? Well, you may not be surprised to know that I have not, as yet, been called to the hospital to receive my new liver – but I am going in on Monday for a routine MRI scan. I will soon start fretting about the cannula.

Now there… are 3…. steps to… carry a donor card – ooh, wap wap!
Just follow steps 1, 2 and 3.

Chopped Liver – No More Heroes

October 29, 2010

As far as I am aware, none of my Rock ‘n’ Roll heroes have died today.

It’s a pretty good day, so far.

Now there… are 3…. steps to… carry a donor card – ooh, wap wap!
Just follow steps 1, 2 and 3.

Chopped Liver – Ill Communication

October 21, 2010

I suppose it serves me right. Been feeling really pretty good for weeks now.

I got blase.

That’s “blase” – as in b…l…a…s…e…accent – but I don’t how to stick on an accent with this editor. But what I mean is, I have been nothing short of boasting how well I have been feeling and that hey, who needs a liver transplant? Not me.

But for the past few days I have been feeling less than pretty good.

Could be a combination of any number of things – that’s the thing – I sometimes don’t really know when it’s my liver playing up, or my bile ducts blocked, or ordinary common or garden flu, or just the onset of the cold weather dragging me down – but right now I am shivvering, my tummy is unsettled and I am generally under the weather.

Could be another couple of contributory factors. I started taking a tummy settling pill – that seemed to work – but has side effects like feeling bloated. So swings and roundabouts on that one – I will carry on for the time being – know your body and act accordingly is what I say.

Other factor – nah it can’t surely be anything to do with anything – but my mum is down staying with us for a few days. This has its own stresses and strains – but to be honest I have not been feeling them as yet, simply because I am immersed in my own downturn to even notice she’s here.

But to continue my stance of knowing your own body and acting accordingly – I think I may have a blocked bile duct and I intend to simply ride this out over the next few days. I may have been staying up too late recently still trying to fix the viruses on my computer – hey, maybe its my computer that has the blocked bile ducts and me who has a virus?

Now there… are 3…. steps to… carry a donor card – ooh, wap wap!
Just follow steps 1, 2 and 3.

Chopped Liver – Head, Shoulders, Knees and Toes

October 6, 2010

So here’s how I spend a fun day.

Wakey wakey… time for brekky… take Weedy to school, back in time to head off to my Gastro appointment at the ‘ossy.

I meet a … I dunno, consultant? Maybe. She may have said what she was – she may not, can’t remember. Anyway nice woman, but she didn’t know me. My notes look more like the size of the manuscript of the Encyclopaedia Brittanica – in triplicate. So she ain’t gonna find out too much about me in a 2-minute skim through.

So I tell her about me. After about 10 minutes I tell her I am waiting on a liver transplant – this is news to her – to be honest I don’t really know the point of this – unless I tell her I am feeling lousy and I’d love a colonoscopy please – or two if they’re on special offer.

Anyway, I’m a busy man. Got people to see. Appointments to keep. So Goodbye nice woman – see you again sometime.

Next stop – BLOOD! Hmmm…. gimme dat needle boy – yeh, stick it right in there – that’s it – excellent, ram it in. There – six gallons of blood given.

Now, I just happened to have with me the form my GP gave me to have an X-Ray on my continually painful hand as a result of my numerous accidents and misdemeanors of the previous couple of weeks.

you see, Smiler, you can do this...

So, have I got time to wait in the queue for an X-Ray prior to appointment number 4 at the toothman? I went down to the department – and hey! there was nobody waiting.

Sat down for 1 minute, went into the X-Ray room, stuck out my hand, made a smiley face with it for the camera – SNAP – went the camera (not my hand) – got the result – no obvious fracture – goodbye.

Why can’t i ever have anything straightforward? Is the hand broken or is it not? GP’s, friends, consultants – none of them can say what’s wrong with it? Except me, of course, I know it’s sore.

And so, as the time approacheth two-thirty – yeh, yeh, tooth-hurtee an’ all that, I am off to the dentist. Older readers (as in readers from old) will know that he is the dentist who saved my life and indirectly got me on the liver transplant list – true, I kid you not, so when I handed him over £75 for the privilege of him saying to me that my teeth are fine, I felt grateful – not worthy, even.

Now, it’s time to do some evening work, prior to … well, prior to my appointment with Smiler in the morning. Should I ask him what’s going on? Should I remind him it’s over the 6 month estimate I was told to expect? Should I just leave it to fate? Or should I do what I normally do?

And that is to talk about the merits of the iPhone or the Blackberry!

Now there… are 3…. steps to… carry a donor card – ooh, wap wap!
Just follow steps 1, 2 and 3.

Chopped Liver – Popcorn Double Feature

October 5, 2010

Yes, there is a song about Popcorn – two in fact that I know of – the one I have chosen by The Fall, and of course the early 60’s hit by B Bumble and the Stingers.

Bridge was the slowest ever tonight – and included one near fatality – and that was NOT me on my partner! And it involved Popcorn.

I am now hastily writing my new detective novel – Death By Popcorn. Actually mustn’t be flippant, she seemed in a pretty bad way – hope you’re ok S – gulp, what if she’s not?

Anyway my hand still aches, my leg aches, and now PC is coming out in sympathy AGAIN!

Weedy has been barred from using my laptop now, the poor soul – he is distraught – but believe me, despite Parental Controls, what I found on the desktop “Caligula would have blushed” – so said Morrissey.

Tomorrow, it’s Gastro day – followed by dentist day. I have been given a form by my GP for an X-Ray on my hand – she still thinks it needs seeing to and is still swollen – if I can fit it in tomorrow I will do so – but more likely it’ll be Thursday when I have my Liver appointment.

I once had a post titled I’m a Walking Miracle – it sounds like I am the Walking Dead (with limp).

Hey, it’s almost midnight – gotta post – and attend to this bleedin’ computer.