Posted tagged ‘ukcybernaut’

Chopped Liver – Eternal Circle

November 29, 2010

Just a brief update – haven’t talked about liver transplants much lately – not since Bart Simpson hijacked my posts – so I thought I’d redress it now.

Nothing to report.

Except that for the past week or so I have felt pretty good. I believe it’s solely when my bile ducts get blocked that I feel bad – and look bad.

So, I deduce that my bile ducts have been clear for the past week or so – which is good.

I do have another visit to the cardiologist later this week – but this, I believe, is because the hospital have lost the results of my previous one from only a couple of months back.

It feels like an eternal circle – or cycle – with the only thing to break the cycle being….

… that phone call.

But if you want a good read – try @ukcybernaut ‘s Transplant People Daily News.

Now there… are 3…. steps to… carry a donor card – ooh, wap wap!
Just follow steps 1, 2 and 3.


Chopped Liver – A Day In The Life

November 17, 2010

I read the news today, oh boy.

I want to mention the creation of a new online newspaperblog thingy. It’s called the The Transplant-people Daily and it is the creation of @ukcybernaut – or Mark as he was pre-twitter.

You may have heard me mention Mark before in these pages – that is because he was waiting on a double lung transplant. Most of you may not even realised such a thing existed – I didn’t.(*) However, Mark had his operation barely 6 weeks ago and he’s already back home and launching this new initiative. It brings a new meaning to the word Respect in my book.

And I would like to say that I am proud to be featured in the current edition – it just continues to show a) what you can achieve when you overcome or simply ignore hurdles and b) the ever-expanding use and ease with which we can communicate in the modern age.

Do feel free to have a read of Mark’s paper and I am sure he will be grateful to receive your feedback.

(*) I say I didn’t – actually I did – because @Lamlungartist had a similar operation and went on to compete highly successfully at various sporting events – a bigup to you Justine.

Now there… are 3…. steps to… carry a donor card – ooh, wap wap!
Just follow steps 1, 2 and 3.

Chopped Liver – Voodoo Chile (Miners’ Return)

October 13, 2010

Absence does indeed make the heart go fonder. (It doesn’t, however, make livers come quicker!)

I’ve been moved and touched by the messages of goodw… hang on a minute – I don’t do sentimental crap. But I do have one or two things to say.

Firstly, a big shout for my Cyber Buddy – Mark (twitter @ukcybernaut – see his web blog link on the right of this screen – it’s caled Take a Breath and say 99). Mark had a double lung transplant only a week ago – he is now in a standard hospital ward, tweeting away again. Take a bow, Mark and say 100!

Special mention to one of my new readers – (twitter @lilsophie). Jenny posted this comment which genuinely touched me. She said…

“Well, your really good at blogging. I love your writing style. But I understand your wanting to possibly quit. Especially if you started all this to document your journey of your liver transplant. It could get very depressing to post day after day of no positive updates. Not only is it depressing for you but for the readers as well.

But here are a couple of things to think about:

1. The journey is difficult and for some people drags on…. So I think it’s good for others to read what a roller coaster ride it can be. Not necessarily to have “pity” for you. But for people like me, who need to learn that sometimes there are 1 or 2 steps forward and 3 or 4 steps back. And that’s “normal” for whatever normal is. There is just comfort in knowing that others have been through similar experiences and can truly understand what your talking about. So many people don’t understand. But we can’t expect them to either.

2. Even in light of this frustrating series of events you’ve managed to keep your sense of humor. At least in your writing anyway. Your daily life could be a totally different story. So as each of us go through our own personal difficult situations it’s refreshing to find a jewel of a post such as this. Still expressing the frustration but also making me smile and laugh.

3. But along those lines…your posts shouldn’t be geared to entertaining people like me – unless that’s your goal. Posting the journey is a healthy, therapeutic release of the good, bad, and ugly along the way. It’s good to get this stuff out. And if someone stumbles across it by accident and gets something out of it then it’s an extra gift for both you and the reader.

These are just my opinions. I don’t really know if continuing your blogging is healthy for you or not. Only those closest to you can provide the feedback on how this affects you personally.

But I do like your writing and I found your entries on a very touchy subject refreshing. :-)”

Phew – how can you not be persuaded by that? But when you consider Jenny’s own situation – it really does make me humble. My thoughts are with you Jenny.

But, of course, it was never my intention to cease completely. I’ve been missing writing my posts as much as you lot seem to have been missing reading them – in fact I have had a record number of early morning readers today – and there’s nothing for you poor buggers to read.

So, how am I?

I’m fine – thanks for asking.

Now there… are 3…. steps to… carry a donor card – ooh, wap wap!
Just follow steps 1, 2 and 3.